msb-0388 Move Over MS

msb-0388 Move Over MS

YouTube videos:

"Move It On Over"  by: "Hank Williams'"
..

intro

Disclaimer! Disclaimer! Disclaimer!

MSBPodcast is "not" any kind of a medical podcast.

It is by and for MSers.

Its purpose is to keep us entertained, to explain our symptoms, to remark on our discoveries, and to raise the general consciousness about our disease.

The path to illness is shadowy, murky and rough strewn.

The path to wellness is lit by the lamp of knowledge.

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Feedback comes first, so...

Shivver me timbers, oi missed "International Talk loik a Pirate Day", but it were few days ago , the nineteenth of September. Arrrr,,,

Sorry Miss Chris but the video to accompany this episode is by Hank Williams.

It seemed like a perfect accompaniment to the topic.

I know you're not into C&W, but at least its not on the program itself.
 
---- "I Gotta Move On" by: "Andre Bisson" http://www.andrebisson.ca/

Feed Forward comes next, so...

This is "your" segment.
 
Say "your" piece on this segment.
 
Share with other MSers whatever "you" want to share.
 
Drop us an email: "charles at MSBPodcast.com"
 
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This rightfully belongs in the Feed Forward segment.

I am starting to expand msbpodcast.com into an actual web radio station.
 
Starting in January 2010, msbpodcast will have an interactive component which will be called MS Web Radio [ http;//www.MSWebRadio.com ]
 
Right now its not operative and its only a repeater to bring people to the msbpodcast.com site but I'm going to retool the web site to handle the web radio component.
 
It will also be podcast so if you don't get to it, it will still be available after the airing.
 
MS Web Radio will be held for a half an hour every Sunday afternoon at 3PM (15:00) my time.
 
I will be taking my definitely, uh, unusual show and opening it up to everybody.
 
I'll keep you posted on my progress as it happens.
 
---- "Move On" by: "Wes Jeans" http://www.myspace.com/wesjeans
 
Feed Me comes third, so...

I now have THREE sponsors. Success breeds success.
 
It you're listening on this podcast through iTunes or through a web browser, just click on the image for the sponsor and I'll take you right to the appropriate web page.
 
If you're on an iPhone or an iPod touch, you should be good to go too.
 
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The first sponsor, you should be all familiar with and maybe even have bought some t-shirts.[ http://www.artoshirt.net/servlet/the-MS-Artists/Categories ] (whispers) That's the whole idea.
 
I'm a big T-Shirt wearer since losing my job and giving up the monkey suits.
 
I'm wearing one of the many shirts right now. The one that says: "Guitarded". I've even got a compliment on it on the boulevard around the corner from my apartment.
 
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The second sponsor is the CADDi by BARBCO. [ http://barbco.biz ]
 
The picture of the CADDi in use sort of says it all.
 
BarbCo is very generously giving a dollar of  from every order they process to a bunch of causes and YOU select the cause.
[ http://barbco.biz/MultipleSclerosis.htm ]
 
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The third sponsor is someone by the name of Rudy Sims who has a web site for people who are disabled in some way or other to exchange their information and other resources. [ http://www.disabilityresourceexchange.com/ ]
 
Join him in making friends among the disabled community and in sharing the resources and information we all need to live better.
 
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My Book is out and Lulu are still [expletive deleted] but I don't have a choice anymore so lets make the best of it until I write a book about The Disability Show.
 
Its got:
• a frontispiece
• a Dedication.
• a Table of Contents
• Some History,
• Some Biography,
• Some Technology,
• Some Evolution,
• Some Episodes, (40 choice ones,)
• Some Parting Thoughts,
• URLs & references, a list of
• Books and one heck of an
• Index

It is awesome.

If you'd like to help me out and get a nice book to read for your trouble, you'll head to Lulu.com and purchase a copy of "Episodes: The story of an MSer and of MSB's Podcast".

The link is "live" on the podcast. [ https://www.lulu.com/commerce/index.php?fBuyContent=7503026 ]

The hardcover is beautiful but it IS a bit expensive for a single copy; they're cheaper if you buy lots of them; its eBook is $6.25.

The paperback is a pocketable version and better looking than most but it IS still a bit expensive for a single copy; they're cheaper if you buy lots of them; its eBook is $6.25.

I need the money to live. Have some pity folks.

Buy which ever you want. (But wouldn't you have a nice hard cover? [Or, are you sure I couldn't talk you into a paperback edition? {I really "need" the dough... :-}])

Oh all right.

Its the eBook then? [ sigh ]
 
---- "Move On" by: "Robb McMahan" http://msbpodcast.pbworks.com/MissingArtistPage

"Thesis:"

I'm sitting at my desk looking at some pointless and utterly unrelated images of people, and a bowl of fruit?

"moveoverms.org" sent me a email asking me to help them build an even better site.

[slow exhalation]

Wait. It gets even better…

---- "Move Your Mind" by: "Matt Mays & El Torpedo" http://www.last.fm/music/Matt+Mays

"Synthesis:"

Their email ends with "We look forward to hearing from you soon."

Well, here's their chance to, for real.

Like I said, they're asking me to help them build an even better site.

The problem with websites are two fold.

First is that people don't like to read, may have trouble with reading, may read bring too much of their own experiences, or too little of their own experiences, to the information that's on the page. For a lot of reasons, MSers just won't stumble onto the site.

Second is that it actually takes a great deal of skill to express what you want.

I read an enormous amount, and I write everyday, day in, day out, week in, week out.

Its all I do anymore; its all I "can" still do anymore.

I live (and I die a little everyday,) by the old  saw: "You may have thought your understood what you heard, but I don't think you realize that what said was not what I meant."

Writing something is damnably hard.

I am sticking to biographic and non-fiction because there's touchstones that I can feel as I stumble about, finding my way around in the dark here.

Part of the second problem is that most people who created the language were themselves healthy, or in denial.

This leads to situations like David Paterson, the blind governor of New York state, telling colleagues that he'll "see" them later.

It should be obvious to all and sundry that he'll do no such thing since he blind.

Language is clearly no help in "speaking truth to power."(What ever that is supposed to mean.)

There are a bunch of traps and pitfalls like this.

Then there is the fact that written English is entirely devoid of diacritical marks.

This leads to "tomayto", "Tomahto" situation in that nobody ever knows what the vowels are supposed to sound like, never mind colloquial usage and regional and multinational accents.

I include the entire written text of every episode along with the spoken word so that people can get my meaning despite the differences in pronunciation.

But straight ol' text doesn't get across any emphasis.

There are already many more shades of meaning which can be communicated without any need for visual explanation but just from my intonation.

---- "IF IT MOVES - IT AINT SAFE" by: "MADHOUSE" http://www.myspace.com/madhousedetroit

"Conclusion:"

moveoverms.org have sent me a email asking me to help them build an even better site.

Here's an idea, how about podcasting to your membership?

----

I just read something in the New York Times [ http://www.nytimes.com/2009/09/15/technology/15speech.html?ref=technology ] that makes me despair for anyone living in this vast, stupid wasteland, controlled as it is by people who have for-profit rules to "prevent" things from happening with ruthless denial of access to health.

I have become convinced that health-don't-care is killing America as surely as disease is decimating its citizens.

Now I have to get the heck out if this country before *I* get sick.

I really don't expect to finish the decade in the 'States.

President Obama is a mighty good man but the safety net you have here in the 'States just catches you once you've already been made destitute by whatever got you.

I don't intend to live out the declining years of a vastly shortened life as a pauper.

Its tough enough being healthy in this country. I don't intend to try it being sick.

At some point soon, the podcasts will definitely be originating from Montréal, Québec, Canada.

The health care system in Canada is beckoning (as opposed to the health-don't-care system here South of the border.)

Think of it as a reverse brain drain.

---- "Move" by: "Jen Elliott" http://www.citycanyons.com/jenElliott/index.html

Outro

----

Theme and 'incidental music' from:
"msb_theme",
 by: "Guy David",
 http://www.guydavid.com/
 no album,
 via personal contract

YouTube video list:
 
"Move It On Over"
  by: "Hank Williams'"
 
Song list:
 
"I Gotta Move On"
 by: "Andre Bisson"
 http://www.andrebisson.ca/
 album: "none"
 via: music.podshow.com
 
"Move On"
 by: "Wes Jeans"
 http://www.myspace.com/wesjeans
 album: "none"
 via: music.podshow.com"
 
"Move On"
 by: "Robb McMahan"
 http://msbpodcast.pbworks.com/MissingArtistPage
 album: "none"
 via: music.podshow.com
 
"Move Your Mind"
 by: "Matt Mays & El Torpedo"
 http://www.last.fm/music/Matt+Mays
 album: "none"
 via: music.podshow.com
 
"IF IT MOVES - IT AINT SAFE"
 by: "MADHOUSE"
 http://www.musicalley.com/music/artists/bandphotos/853744266_m.jpg
 album: "none"
 via: music.podshow.com
 
"Move"
 by: "Jen Elliott"
 http://www.citycanyons.com/jenElliott/index.html
 album: "none"
 via: music.podshow.com


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Photo Credits:

 All images, synchronized with the songs, are of the artists and come via music.podshow.com except when they aren't. :-)

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Books:

go to my books page at

 http://msbpodcast.pbwiki.com/BookRecommendations


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Links:

 Guy David - intro & theme
  http://www.guydavid.com

 iTunes
  http://www.apple.com/itunes/download/

 iPodder
  http://www.ipodder.org/directory/4/ipodderSoftware
A.K.A.
 Juice
  http://juicereceiver.sourceforge.net/index.php

 iTunes link to download this show
  http://phobos.apple.com/WebObjects/MZStore.woa/wa/viewPodcast?id=120932170

 Multiple Sclerosis Blog
  http://multiplesclerosisblog.blogspot.com/

 This podcast:
  http://www.MSBPodcast.com/

 The Ouch Podcast
  http://phobos.apple.com/WebObjects/MZStore.woa/wa/viewPodcast?id=137157388

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You can leave me comments of the episode at //multiplesclerosisblog.blogspot.com/ or

email me at charles (at) MSBPodcast.com